The knowledge of adolescents with type 1 Diabetes Mellitus about their self-care
DOI:
https://doi.org/10.18554/refacs.v10i3.5761Keywords:
Adolescent, Diabetes mellitus, Type 1, Self care, KnowledgeAbstract
Objective: to identify the self-care actions of adolescents with Type 1 Diabetes Mellitus. Methods: qualitative study, carried out between 2019 and 2020, using the dynamics of creativity and body-knowledge sensitivity, in the pediatric endocrinology outpatient clinic of a university hospital in the Brazilian Federal District, DF, Brazil. Data were transcribed and subjected to thematic analysis. Results: 12 adolescents participated, of which 10 were male, seven were 15 years old, six were in elementary school and five were in high school. On previous hospitalizations, five of them hospitalized only once and five between two to five times. Six thematic categories were identified: (Lack of) Care with Food; (Lack of) Control of glycemic levels; (Lack of) Knowledge of the signs and symptoms of altered glycemia and strategies for control; Drug care; Physical activity; and Self-care in the school context. Conclusion: adolescents with Diabetes Mellitus 1 had adequate knowledge about self-care, but showed difficulties in performing the treatment. The role of the nurse is fundamental, not only in health education actions, but also in qualified listening, taking into account the individuality and the moment of each adolescent.
References
Federação Internacional de Diabetes. Diabetes Atlas. 8 ed. 2017. Disponível em: https://diabetesatlas.org/atlas/tenth-edition/
Haak T, Gölz S, Fritsche A, Füchtenbusch M, Siegmund T, Schnellbächer E, et al. Therapy of type 1 diabetes: abridged version of the S3 Guideline. Exp Clin Endocrinol Diabetes [Internet]. 2019 Dec [citado em 05 jun 2019]; 127(SUPPL 1): S27-S38. DOI: 10.1055/a-0984-5696
Dagan E, Dubovi I, Levy M, Levin NZ, Levy ST. Adherence to diabetes care: knowledge of biochemical processes has a high impact on glycaemic control among adolescents with type 1 diabetes. J Adv Nurs. [Internet]. 2019 [citado em 10 jul 2019]; 75:2701-09. DOI: 10.1111/jan.14098
Taylor SG, Renpenning K. Self-care science, nursing theory, and evidence-based practice. New York: Springer Publishing Company; 2013 [citado em 10 jul 2019]; 26:3. DOI: 10.1177/0894318413489155
Mcewen M, Wills E. Bases teóricas de enfermagem. 4ed. Porto Alegre: Artmed; 2016. 608p.
Flora MC, Gameiro MGH. Autocuidado dos adolescentes com diabetes mellitus tipo 1: conhecimento acerca da doença. Referência [Internet]. 2016 [citado em 12 jun 2019]; 4(8):17-26. DOI: http://dx.doi.org/10.12707/RIV16010
Saoji N, Palta M, Young HN, Moreno MA, Rajamanickam V, Cox ED. The relationship of type 1 diabetes self-management barriers to child and parent quality of life: A US cross-sectional study. Diabet Med. [Internet]. 2018 Jun [citado em 15 jun 2019]; 35(11):1523-30. DOI: https://doi.org/10.1111/dme.13760
Greco-Soares JP, Dell’Aglio DD. Adesão ao tratamento em adolescentes com diabetes mellitus tipo 1. Psicol Saúde Doenças [Internet]. 2017 [citado em 23 jul 2019]; 18(2):322-34. DOI: http://dx.doi.org/10.15309/17psd180204
Ribeiro LCM. Ser adolescente com diabetes mellitus tipo 1: experiências e transições. [dissertação]. Recife: Centro de Filosofia e Ciências Humanas, Universidade Federal de Pernambuco; 2019. 105 p. Disponível em: https://repositorio.ufpe.br/handle/123456789/33953
Bertoldo CS, Neves ET, Ribeiro AC, Barreto C, Oliveira DC, Marafiga CL. Perspectiva de adolescentes que vivem com diabetes mellitus acerca do autocuidado. New Trends in Qualitative Research [Internet]. 2020 [citado em 29 mar 2022]; 3:347-58. DOI: https://doi.org/10.36367/ntqr.3.2020.347-358
Batista AFMB, No?brega VM, Fernandes LTB, Vaz EMC, Gomes GLL, Collet N. Self-management support of adolescents with type 1 Diabetes Mellitus in the light of healthcare management. Rev Bras Enferm. [Internet]. 2021 [citado em 29 mar 2022]; 74(3):e20201252. DOI: https://doi.org/10.1590/0034-7167-2020-1252
Lacerda MR, Costenaro RGS. Metodologias da pesquisa para enfermagem e saúde: da teoria à prática. Porto Alegre: Moriá; 1ª reimpressão 2018. 496p.
Nascimento LCN, Souza TV, Oliveira ICS, Moraes JRM, Aguiar RCB, Silva LF. Saturação teórica em pesquisa qualitativa: relato de experiência na entrevista com escolares. Rev Bras Enferm. [Internet]. 2018 [citado em 10 jan 2020]; 71(1):228-33. DOI: https://doi.org/10.1590/0034-7167-2016-0616
Minayo MCS. O Desafio do Conhecimento: Pesquisa Qualitativa em Saúde. 14ed. São Paulo: Hucitec; 2014. 416 p.
Lennerz BS, Barton A, Bernstein RK, Dikeman D, Diulus C, Hallberg S, et al. Management of type 1 diabetes with a very low-carbohydrate diet. Pediatrics [Internet]. 2018 Jun [citado em 30 jun 2020]; 141(6):e20173349. DOI: https://doi.org/10.1542/peds.2017-3349
Jonker D, Deacon E, Rensburg E, Segal D. Illness perception of adolescents with well-controlled type 1 diabetes mellitus. Health Psychol Open. [Internet]. 2018 [citado em 02 fev 2020]; 5(2):1-9. DOI: 10.1177/2055102918799968
Mackey E, O’Brecht L, Holmes C, Jacobs M, Streisand R. Teens with type 1 diabetes: how does their nutrition measure up?. J Diabetes Res. [Internet]. 2018 Sept [citado em 20 jan 2020]; 6:e5094569. DOI: https://doi.org/10.1155/2018/5094569
Babler E, Strickland CJ. Helping adolescents with type 1 diabetes “figure it out”. J Pediatr Nurs. [Internet]. 2016 [citado em 02 fev 2021]; 31(2):123-31. DOI: https://doi.org/10.1016/j.pedn.2015.10.007
Little SA, Speight J, Leelarathna L, Walkinshaw E, Tan HK, Bowes A, et al. Sustained reduction in severe hypoglycemia in adults with type 1 diabetes complicated by impaired awareness of hypoglycemia: two-year follow-up in the HypoCOMPaSS randomized clinical trial. Diabetes Care [Internet]. 2018 Aug [citado em 20 dez 2020]; 41(8):1600-7. DOI: https://doi.org/10.2337/dc17-2682
Góes AP, Vieira MR, Júnior RL. Diabetes mellitus tipo 1 no contexto familiar e social. Rev Paul Pediatr. [Internet]. 2007 jun [citado em 15 out 2020]; 25(2):124-8. DOI: https://doi.org/10.1590/S0103-05822007000200005
Gabriel BD, Albuquerque CT, Consoli MLD, Menezes PFC, Reis JS. Training adolescents with type 1 diabetes to carbohydrate counting without parents’ help. Rev Nutr. [Internet]. 2016 [citado em 24 nov 2020]; 29(1):77-84. DOI: https://doi.org/10.1590/1678-98652016000100008
Kamrul-Hasan ABM, Paul AK, Amin MN, Gaffar MAJ, Asaduzzaman MD, Saifuddin M, et al. Insulin injection practice and injection complications - Results from the Bangladesh Insulin Injection Technique Survey. Eur Endocrinol. [Internet]. 2020 [citado em 25 fev 2021]; 16(1): 41-8. DOI: https://doi.org/10.17925/EE.2020.16.1.41
Okido ACC, Almeida A, Vieira MM, Neves ET, Mello DF, Lima RAG. As demandas de cuidado das crianças com diabetes mellitus tipo 1. Esc Anna Nery Rev Enferm. [Internet]. 2017 [citado em 25 jul 2020]; 21(2):e20170034. DOI: https://doi.org/10.5935/1414-8145.20170034
Czenczek-Lewandowska E, Leszczak J, Baran J, Weres A, Wyszynska J, Lewandowski B, et al. Levels of physical activity in children and adolescents with type 1 diabetes in relation to the healthy comparators and to the method of insulin therapy used. Int J Environ Res Public Health [Internet]. 2019 [citado em 10 nov 2020]; 16(18):3498. DOI: https://doi.org/10.3390/ijerph16183498
Endara M, Masden D, Goldstein J, Gondek S, Steinberg J, Attinger C. The role of chronic and perioperative glucose management in high-risk surgical closures: a case for tighter glycemic control. Plast Reconstr Surg. [Internet]. 2013 Oct [citado em 25 jul 2020]; 132:996-1004. DOI: 10.1097/PRS.0b013e31829fe119
Borges BVS, Neto JCL, Falcão LM, Silva AP, Freitas RWF. Diabetes mellitus tipo 1 em adolescentes: diagnóstico ao convívio diário com a enfermidade. Rev Enferm UFPE on line [Internet]. 2016 jul [citado em 19 jun 2020]; 10(7):2328-35. DOI: 10.5205/reuol.9106-80230-1-SM1007201605
Luo D, Xu JJ, Cai X, Zhu M, Wang H, Yan D, et al. The effects of family functioning and resilience on self-management and glycaemic control among youth with type 1 diabetes. J Clin Nurs. [Internet]. 2019 Dec [citado em 20 jun 2020]; 28(23-24):4478-87. DOI: https://doi.org/10.1111/jocn.15033
Brazeau AS, Nakhla M, Wright M, Henderson M, Panagiotopoulos C, Pacaud D, et al. Stigma and its association with glycemic control and hypoglycemia in adolescents and young adults with type 1 diabetes: cross-sectional study. J Med Internet Res. [Internet]. 2018 [citado em 20 jun 2020]; 20(4):e151. DOI: https://doi.org/10.2196/jmir.9432
Published
How to Cite
Issue
Section
License
Copyright (c) 2022 JOURNAL FAMILY, CYCLES OF LIFE AND HEALTH IN SOCIAL CONTEXT
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.
Each of the authors of the manuscript must complete and sign a copy of Statement of Responsibility and Copyright Transfer Agreement, which must be attached, by the submitting author, in step 4 of the submission process in the journal system (Click on the "Browse" option, select the file that should be inserted in pdf format, click on the "Download" button, in the "Title" field type: Declaration of responsibilities, then click the "Save and Continue" button and proceed with the submission process.
Note: Including scanned signature will not be accepted. Each author of the manuscript must complete a declaration individually.
REFACS de Universidade Federal do Triângulo Mineiro está licenciado com uma Licença Creative Commons - Atribuição-NãoComercial 4.0 Internacional.
Baseado no trabalho disponível em www.uftm.edu.br.
Podem estar disponíveis autorizações adicionais às concedidas no âmbito desta licença em http://www.uftm.edu.br/refacs.