Family care for individuals with post-COVID-19 condition at home
DOI:
https://doi.org/10.18554/refacs.v14i00.8875Keywords:
COVID-19, Family, Nursing, Home EnvironmentAbstract
Objective: to understand the dynamics of family care provided to individuals with post-COVID-19 condition at home. Methods: this qualitative study was based on Ingrid Elsen’s attributes of family care and was conducted at a post-COVID outpatient clinic in a teaching hospital in the southern region of the state of Rio Grande do Sul, Brazil. The sample was purposive, and data collection took place between March and August 2022 through semi-structured interviews, as well as the construction of genograms and ecomaps. Data were organized using the IRAMUTEQ software and analyzed using content analysis. Results: a total of 20 participants were included, comprising 10 individuals with post-COVID-19 condition and 10 family members, representing 10 families. Two categories emerged: “When we needed it, everyone came together”: care for individuals with post-COVID-19 condition; and “When you are sick, that is when you have friends”: community participation in care. Individuals with post-COVID-19 condition reported persistent symptoms such as fatigue, motor limitations, cognitive changes, and emotional vulnerability, which compromised their autonomy and return to daily activities. Families reorganized routines, shared responsibilities, and mobilized affective, community, and spiritual support networks. This care was complex and continuous, sustained by strong bonds and practices of protection, presence, and the promotion of well-being. Conclusion: family involvement revealed not only the capacity to cope with the complications and uncertainties of post-COVID-19 condition, but also the importance of institutional recognition of the family as a key agent in care.
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