Quality of life after bone marrow transplant: comparison between evaluation of children and mothers

Authors

DOI:

https://doi.org/10.18554/refacs.v6i4.3284

Keywords:

Quality of life, Child, Mothers, Bone marrow transplantation

Abstract

This study aimed to evaluate the quality of life of children submitted to bone marrow transplantation and compare the results of self-assessment with the hetero-evaluation carried out by the mothers. The sample was composed by 14 participants, seven mothers and their children. The Pediatric Quality of Life Questionnaire PedsQL™. The results indicate significant differences in the values of mothers and children evaluation, and mothers overestimated their children QV. This indicator is important because it suggests the need to implement interventions with the pair, in order to facilitate dialogue and increase understanding of the emotional experiences of children by mothers.

Author Biographies

Érika Arantes de Oliveira Cardoso, Universidade de São Paulo

Psicóloga. Mestre e Doutora em Psicologia. Orientadora do Programa de Pós-graduação em Psicologia (PPGP) e Educação da Faculdade de Filosofia, Ciências e Letras e de Ribeirão Preto da Universidade de São Paulo (FFCLRP-USP), Ribeirão Preto, SP, Brasil

Juliana Tomé Garcia, USP, Ribeirão Preto, SP, Brasil

Psicóloga. Mestranda pelo PPGP/ FFCLRP-USP, Ribeirão Preto, SP, Brasil

Ana Luisa Carvalho Guimarães, Hospital das Clínicas da Faculdade de Medicina de Ribeirão Preto (HC-FMRP), SP, Brasil

Psicóloga. Especialista em Psicologia Hospitalar. Mestre em Psicologia. Psicóloga da Unidade de Terapia Imunológica (Transplante de Medula Óssea) do Hospital das Clínicas da Faculdade de Medicina de Ribeirão Preto (HC-FMRP), SP, Brasil

Maria Laura de Paula Lopes Pereira, HC-FMRP, Ribeirão Preto SP, Brasil

Psicóloga. Bióloga. Psicóloga do HC-FMRP, Ribeirão Preto SP, Brasil

Jorge Henrique dos Santos

Psicólogo

Manoel Antônio dos Santos

Psicólogo. Mestre e Doutor em Psicologia Clínica. Professor Titular do PPGP / FFCLRP-USP, Ribeirão Preto, SP, Brasil. Bolsista de Produtividade em Pesquisa do CNPq, nível 1B.

References

Crovador LF, Cardoso EAO, Mastropietro AP, Santos MA. Qualidade de vida relacionada à saúde de pacientes com esclerose múltipla antes do TCTH. Psicol Reflex Crític. 2013; 26(1):58-67.

Mazza VA, Souza C, Estevão AR, Guimarães SL, Mercê NNA. Vivência de famílias de crianças e adolescentes submetidos ao transplante de células-tronco hematopoéticas. Rev Eletrônica Enferm. [Internet]. 2016 [citado em: 15 jul 2017]; 18:1-11. Disponível em: http://doi.org/10.5216/ree.v18.40131

Freitas IS, Oliveira-Cardoso EA, Santos MA. Espiritualidade e religiosidade em mães de crianças com câncer hematológico. Psicol Estud. 2017; 22(1):433-47.

Oliveira-Cardoso EA, Santos MA. Luto antecipatório em pacientes com indicação para o Transplante de Células-Tronco Hematopoéticas. Ciênc Saúde Colet. 2013; 18(1):2567-75.

Ribeiro JP, Gomes GC, Thoferhrn MB, Mota MS, Cardoso LS, Cecagno S. Criança hospitalizada: perpectivas para o cuidado compartilhado entre enfermagem e família. Rev Enferm UFSM. 2017; 7(3):350-62.

Anders JC, Rosa LM, Souza AIJ. Cuidados de enfermagem à criança e ao adolescente submetidos a transplante de células-tronco hematopoéticas. In: Associação Brasileira de Enfermagem; Gaíva MAM, Ribeiro CA, Rodrigues EC, organizadores. PROENF- Programa de atualização em Enfermagem: saúde da criança e do adolescente. 2015; 2(1):111-153. (Sistema de Educação Continuada à Distância, v. 2).

Seidl EMF, Zannon CMLC. Qualidade de vida e saúde: aspectos conceituais e metodológicos. Cad Saúde Pública. 2004; 20(2):580-8.

Varni JW, Burwinkle TM, Katz ER, Meeske K, Dickinson P. The PedsQl in pediatric cancer: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales Multidimensional Fatigue Scale and Cancer Module. Cancer. 2002; 94(1): 2090-106.

Felder-Puig R, Frey E, Proksch K, Varni JW, Gadner H, Topf R et al. Validation of the German version of the Pediatric Quality of Life Inventory (PedsQL) in childhood cancer patients off treatment and children with epilepsy. Qual Life Res. 2004; 13(1):223-34.

Scarpelli AC, Paiva SM, Pordeus IA, Ramos-Jorge ML, Varni JW, Allison PJ. Measurement properties of the Brazilian version of the Pediatric Quality of Life Inventory [PedsQL (TM)] cancer module scale. Health Qual Life Outcomes. 2008; 6:7.

Sitaresmi MN, Mostert S, Gundy CM, Sutaryo, Veerman AJP. Health-related quality of life assessment in Indonesian childhood acute lymphoblastic leukemia. Health Qual Life Outcomes. 2008; 6:96.

Lau JTF, Yu X -n, Chu Y, Shing MMK, Wong EMC, Leung TF, et al. Validation of the chinese version of the Pediatric Quality of Life InventoryTM (PedsQLTM) Cancer Module. J Pediatr Psychol. 2009; 35(1):99-109.

Ji Y, Chen S, Li K, Xiao N, Yang X, Zheng S, et al. Measuring health-related quality of life in children with cancer living in Mainland China: feasibility, reliability and validity of the chinese Mandarin version of PedsQL 4.0 Generic Core Scales and 3.0 Cancer Module. Health Qual Life Outcomes. 2011; 23(9):103-16.

Tsuji N, Kakee N, Ishida Y, Asami K, Tabuchi K, Nakadate H, et al. Validation of the Japanese version of the Pediatric Quality of Life Inventory (PedsQL) Cancer Module. Health Qual Life Outcomes. 2011; 9(22):1-16.

Chaudhry Z, Siddiqui S. Health related quality of life assessment in Pakistani pediatric cancer patients using PedsQLTM 4.0 generic core scale and PedsQLTM cancer module. Health Qual Life Outcomes. 2012; 10:52.

Kuhlthau KA, Pulsifer MB, Yeap BY, Rivera Morales D, Delahaye J, Hill KS, et al. Prospective Study of Health-Related Quality of Life for Children With Brain Tumors Treated With Proton Radiotherapy. J Clin Oncol. 2012; 30(17):2079-86.

Batalha LMC, Fernandes AM, Campos C. Quality of life among children with cancer: agreement between child and parent reports. Esc Anna Nery Rev Enferm. 2015; 19(2):292-6.

Botelho ACSR. Validação para o uso no Brasil do “Pediatric Quality of Life™” (PedsQLTM): um estudo envolvendo famílias com crianças e adolescentes acometidos por câncer. [dissertação]. Belo Horizonte: Faculdade de Odontologia, Universidade Federal de Minas Gerais; 2007.

Prado FAC, Cardoso EAO, Zuben BVV, Santos MA. Oficinas de atividades: reconstruindo o cotidiano de pacientes submetidos ao TMO. Rev Cult Ext. 2015; 12(1):86-96.

Lawitschka A, Guclu ED, Varni JW, Putz M, Wolff D, Pavletic S, et al. Healty-related quality of life in pediatric patients after allogenic SCT: development of the PedsQL Stem Cell Transplant module and results of a piloty study. Bone Marrow Transplant. 2014; 49(1):1093-7.

Matziou V, Vlachioiti E, Megapanou E, Ntoumou A, Dionisakopouloi C, Dimitriou V. Perceptions of children and their parents about the pain experienced during their hospitalization and its impact on parent´s quality of life. Jpn J Clin Oncol. 2016; 46(5):453-61.

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Published

2018-10-20

How to Cite

Cardoso, Érika A. de O., Garcia, J. T., Guimarães, A. L. C., Pereira, M. L. de P. L., dos Santos, J. H., & dos Santos, M. A. (2018). Quality of life after bone marrow transplant: comparison between evaluation of children and mothers. JOURNAL FAMILY, CYCLES OF LIFE AND HEALTH IN SOCIAL CONTEXT, 6(4), 686–693. https://doi.org/10.18554/refacs.v6i4.3284

Issue

Vol. 6 No. 4 (2018): Outubro a Dezembro - Special Edition: Psychology, Family and Health

Section

Original Articles

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