VIVÊNCIAS DE FAMÍLIAS DE CRIANÇAS COM PARALISIA CEREBRAL SOBRE A UTILIZAÇÃO DE GASTROSTOMIA

Abstract

Objective: to characterize the profile of families of children with cerebral pals and to understand the needs related to health care and that are present in the family context of children with CP, especially those who have a gastrostomy. Method: cross-sectional study of a quantitative and qualitative nature. The research was carried out at the School of Nursing Unit in conjunction with the Orthesis and Prosthesis Project, in the municipality of Guarapuava. Data were collected through semi-structured interviews. Three caregivers of children with CP who have gastrostomy participated. Results: it was possible to expand the discussion into three categories, namely: the process of family adaptation and the difficulties in using the gastrostomy; needs related to gastrostomy care and; the importance of multidisciplinary care. Conclusion: there is some resistance among caregivers to accept the current situation, a gradual and sometimes late processing.