Development and validation of educational material for parents of tracheostomized children
DOI:
https://doi.org/10.18554/refacs.v11i2.6432Keywords:
Tracheostomy, Child, Health education, Patient careAbstract
Objective: to develop and validate a multidisciplinary educational booklet aimed at parents of tracheostomized children. Methods: methodological validation study by consensus of experts carried out using the Delphi technique and carried out in 2020, as well as evaluation of the booklet by parents, in a city in the interior of the state of São Paulo, Brazil. Results: 15 professionals were consulted in the first round and nine in the second; and five parents evaluated the 24-page booklet entitled: “Caring for your child's tracheostomy: A guide for parents”, by answering a questionnaire. There was 80% consensus for both groups. Conclusion: validation had consensus on all items by both groups.
References
Rai SK, Holler T, Propst EJ, Wolter NE, Amin R. Tracheostomy care: clinical practice patterns of pediatric otolaryngologistshead and neck surgeons in a publicly funded (Canadian) health care system. Int J Pediatr Otorhinolaryngol. [Internet]. 2018 [citado em 10 maio 2020]; 115:177-80. Disponível em: https://www.sciencedirect.com/science/article/abs/pii/S0165587618304750?via%3Dihub
Ong T, Liu CC, Elder L, Hill L, Abts M, Dahl JP, et al. The trach safe initiative: a quality improvement initiative to reduce mortality among pediatric tracheostomy patients. Otolaryngol Head Neck Surg. [Internet]. 2020 [citado em 10 maio 2020]; 163(2):221-31.
Disponível em: https://aao-hnsfjournals.onlinelibrary.wiley.com/doi/epdf/10.1177/0194599820911728
Muller RG, Mamidala MP, Smith SH, Smith A, Sheyn A. Incidence, epidemiology, and outcomes of pediatric tracheostomy in the United States from 2000 to 2012. Otolaryngol Head Neck Surg. [Internet]. 2019 [citado em 7 jun 2020]; 160(2):332-8. Disponível em: https://aao-hnsfjournals.onlinelibrary.wiley.com/doi/epdf/10.1177/0194599818803598
Maunsell R, Avelino M, Caixeta Alves J, Semenzati G, Lubianca Neto JF, Krumenauer R, et al. Revealing the needs of children with tracheostomies. Eur Ann Otorhinolaryngol Head Neck Dis. [Internet]. 2018 [citado em 7 jun 2020]; 135(5 Suppl):S93-S97. Disponível em: https://www.sciencedirect.com/science/article/pii/S1879729618301248/pdfft?md5=dee3145b656b1b81d1e98b49ec535141&pid=1-s2.0-S1879729618301248-main.pdf
Shah SJ, Cusumano C, Ahmed S, Ma A, Jafri FN, Yang CJ. In situ simulation to assess pediatric tracheostomy care safety: a novel multicenter quality improvement program. Otolaryngol Head Neck Surg. [Internet]. 2020 [citado em 7 jun 2020]; 163(2):250-8. Disponível em: https://aao-hnsfjournals.onlinelibrary.wiley.com/doi/epdf/10.1177/0194599820923659
Cramer JD, Graboyes EM, Brenner MJ. Mortality associated with tracheostomy complications in the United States: 2007-2016. Laryngoscope [Internet] 2019 [citado em 19 nov 2020]; 129(3):619-26. Disponível em: https://onlinelibrary.wiley.com/doi/epdf/10.1002/lary.27500
Van Orne J, Branson K, Cazzell M. Boot camp for caregivers of children with medically complex conditions. AACN Adv Crit Care [Internet]. 2018 [citado em 19 nov 2020]; 29(4):382-92. Disponível em: https://aacnjournals.org/aacnacconline/article-abstract/29/4/382/2273/Boot-Camp-for-Caregivers-of-Children-With?redirectedFrom=fulltext
McKeon M, Kohn J, Munhall D, Wells S, Blanchette S, Santiago R, et al. Association of a multidisciplinary care approach with the quality of care after pediatric tracheostomy. JAMA Otolaryngol Head Neck Surg. [Internet]. 2019 [citado em 19 nov 2020]; 145(11):1035-42. Disponível em: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6753653/
Abreu ACS, Marinho DF, Cardoso IBP. Tecnologia educativa para os cuidadores de pacientes submetidos a traqueostomia: estudo de validação. Rev Aten Saúde [Internet]. 2019 [citado em 29 nov 2020]; 17(59):19-32. Disponível em: https://seer.uscs.edu.br/index.php/revista_ciencias_saude/article/view/5730/pdf
Dalkey NC. Delphi [Internet]. Santa Monica, CA: RAND Corporation; 1967 [citado em 09 jan 2021]. Disponível em: https://www.rand.org/pubs/papers/P3704.html
Booth J. The Breath Easy Training Manual [Internet]. Cape Town, AS: Children’s Hospital Trust; 2020 [citado em 09 jan 2021]. 84 p. Disponível em: http://breatheasyprogramme.org/uploads/6ba5c67c361fb06ba9c67c3f/1442588335920/Home-Care-Book-final-email.pdf
Manchester University. Tracheostomy [Internet]. Oxford, UK: NHS Foundation Trust; 2019 [citado em 09 jan 2022]. 8 p. Disponível em: http://www.tracheostomy.org.uk/storage/files/RMCH%20Your%20child_s%20tracheostomy.pdf
McGrath B, editor. Comprehensive tracheostomy care: the national tracheostomy safety project manual. Oxford, UK: Wiley-Blackwell; 2014.
American Thoracic Society. Use of a tracheostomy with a child [Internet]. São Francisco, USA: ATS; 2016 Apr [citado em 09 jan 2021]. Disponível em: https://www.thoracic.org/patients/patient-resources/resources/tracheostomy-in-child.pdf
Andres FC, Andres SC, Moreschi C, Rodrigues SO, Ferst MF. A utilização da plataforma Google Forms em pesquisa acadêmica: relato de experiência. Res Soc Dev. [Internet]. 2020 [citado em 09 jan 2021]; 9(9):e284997174. Disponível em: https://rsdjournal.org/index.php/rsd/article/download/7174/6431/106378
Sena JF, Silva IP, Lucena SKP, Oliveira ACS, Costa IKF. Validação de material educativo para o cuidado da pessoa com estomia intestinal. Rev Latinoam Enferm. [Internet]. 2020 [citado 09 jan 2021]; 28:e3269. Disponível em: https://www.revistas.usp.br/rlae/article/view/178841/165437
Staykova MP. Rediscovering the Delphi technique: a review of the literature. Adv Soc Sci Res J. [Internet]. 2019 [citado em 03 jun 2021]; 6(1):218-29. Disponível em: https://journals.scholarpublishing.org/index.php/ASSRJ/article/view/595
Nguemeleu ET, Boivin S, Robins S, Sia D, Kilpatrick K, Brousseau S, et al. Development and validation of a time and motion guide to assess the costs of prevention and control interventions for nosocomial infections: a Delphi method among experts. PLoS ONE. [Internet]. 2020 Nov [citado em 03 jun 2021]; 15(11):1-19. Disponível em: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7660509/pdf/pone.0242212.pdf
Sousa L, Sequeira C, Ferre´-Grau C. ‘Living together with dementia’ – Conceptual validation of training programme for family caregivers: innovative practice. Dementia [Internet]. 2020 [citado em 03 jun 2021]; 19(4):1333-42. Disponível em: https://journals.sagepub.com/doi/10.1177/1471301218762565?url_ver=Z39.88-2003&rfr_id=ori:rid:crossref.org&rfr_dat=cr_pub%20%200pubmed
Lavin J, Shah R, Greenlick H, Gaudreau P, Bedwell J. The Global Tracheostomy collaborative: one institution's experience with a new quality improvement initiative. Int J Pediatr Otorhinolaryngol. [Internet]. 2016 [citado em 03 jun 2021]; 80:106-8. Disponível em: https://linkinghub.elsevier.com/retrieve/pii/S0165-5876(15)00604-7
Avelino MAG, Maunsell R, Valera FCP, Lubianca Neto JF, Schweiger C, Miura CS, et al. First Clinical Consensus and National Recommendations on Tracheostomized Children of the Brazilian Academy of Pediatric Otorhinolaryngology (ABOPe) and Brazilian Society of Pediatrics (SBP). Braz J Otorhinolaryngol [Internet]. 2017 [citado em 03 jun 2021]; 83(5):498-506. Disponível em: https://www.sciencedirect.com/science/article/pii/S1808869417301015/pdfft?md5=e492b7bbe1da8c76cf19fa1cdd9fd186&pid=1-s2.0-S1808869417301015-main.pdf
Ministério da Saúde (Brasil). Secretaria de Ciência, Tecnologia e Insumos Estratégicos. Portaria nº 68, de 23 de novembro de 2018. Torna pública a decisão de incorporar a ventilação mecânica invasiva domiciliar para insuficiência respiratória crônica, mediante pactuação tripartite no âmbito do Sistema Único de Saúde – SUS [Internet]. Brasília, DF: Ministério da Saúde; 2018 nov [citado em 09 jan 2021]. Disponível em: https://bvsms.saude.gov.br/bvs/saudelegis/sctie/2018/prt0068_26_11_2018.html
Thrasher J, Baker J, Ventre KM, Martin SE, Dawson J, Cox R, et al. Hospital to home: a quality improvement initiative to implement high-fidelity simulation training for caregivers of children requiring long-term mechanical ventilation. J Pediatr Nurs. [Internet]. 2018 [citado em 09 jan 2021]; 38:114-21. Disponível em: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6456906/pdf/nihms-1021554.pdf
Wells S, Shermont H, Hockman G, Hamilton S, Abecassis L, Blanchette S, et al. Standardized tracheostomy education across the enterprise. J Pediatr Nurs. [Internet]. 2018 [citado em 09 jan 2021]; 43:120-6. Disponível em: https://www.pediatricnursing.org/article/S0882-5963(18)30051-4/fulltext
Niederberger M, Spranger J. Delphi technique in health sciences: a map. Front Public Health [Internet]. 2020 [citado em 09 jan 2021]; 8:457. Disponível em: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7536299/pdf/fpubh-08-00457.pdf
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